Synergy research published as part of DEBRA’s most comprehensive study of epidermolysis bullosa (EB) patients

This year we are proud to have worked alongside DEBRA UK, the national charity supporting individuals and families affected by Epidermolysis Bullosa (EB), to produce vital insights into the lives of EB patients and their caregivers.

A multi-pronged qualitative and qualitative research approach amongst healthcare professionals and patients was utilised to understand in full the challenges people with EB face and how their care can be improved. The final quantitative studies were conducted amongst 215 patients, 103 carers and 100 GPs and 50 dermatologists.

The findings act as a rich and comprehensive knowledge base for DEBRA to use in informing their strategy, lobbying, campaigning and research funding for treatments and cures.

To download and read the report, and learn more about the key findings and actions DEBRA intend to take as a result, please click here.

At Synergy, we are experts in producing vital research insights into the lives of patients and caregivers across a wide variety of therapy areas.

If you would like to learn more about how we can help you, please contact us.

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